Thursday, October 11, 2012

A rant.


Do you know 1 in 88 boys now get diagnosed with autism. 1 in 88. that is SCARY. it is an epidemic. It used to be in the 60 and 70s, 1 in like 10,000. Autistic people used to be a rarity, now its become common. What is happening to our babies!!??!! And although girls are diagnosed less frequently the number is still high and the diagnosis is usually heavier for girls. like it affects them harder. How sad is that? its heartbreaking i tell you!!
Why? You know???? Why Liam? why him? Why us? Why any child? Why SO MANY? Why is that number only GROWING???
DOESN'T THAT SCARE YOU?!?!?
If i were a young woman trying to have a baby now i would BE VERY AFRAID.
Why is no one seemingly doing anything about it???
Our own pediatrician cant even help, has no answers. He is supportive when i come to him with this or that but THAT IS THE PROBLEM. I am coming to HIM with ideas and research and such. Isn't it supposed to be the OTHER WAY AROUND??? WHERE IS THE HELP???? Where is the GUIDANCE?? Not even a, hey, i heard about this one thing that might help or hey, theres this new thing.....No. none of that from our regular pediatricians.
Why are we thrown into the unknown and left to sink or swim??? THANK GOD I AM NOT AN IDIOT and am a pretty resourceful person because that's what happens. We are left to our own resourcefulness. i mean what about people who aren't savvy with internet or don't know the right questions to ask and don't even know whats out there that can help their child??? Poor child!!! Poor family!!!
I mean our pediatrician is great for the usual stuff, but when it comes to Liam and anything autism related all he does is REFER ME TO SOMEONE ELSE. WHAT THE FUCK???
AND, WHY WONT INSURANCE COMPANIES COVER TREATMENTS THAT HELP?!?!?! IT IS A FUCKING JOKE!!
What is it going to take?? A president of the united states with an autistic child in order to put new policies in place to HELP OUR CHILDREN????? What is it going to take??  WHAT IS IT GOING TO TAKE.
We pay good money for health insurance and pay our taxes.
But we make too much to qualify for most programs that would help Liam and we are too broke to afford to pay for them out of pocket.
AND OUR STUPID INSURANCE COMPANY REFUSES TO COVER TREATMENTS THAT WOULD ESSENTIALLY TREAT CHILDREN LIKE LIAM, VERY WELL IN MOST CASES IF NOT ALMOST COMPLETELY. DOES ANY OF THIS MAKE SENSE TO YOU???? ITS PRETTY MUCH LIKE THEY ARE SAYING EFF YOU AND YOUR CHILD WE DONT GIVE A SHIT BECAUSE THERE IS NOT ENOUGH "RESEARCH" OUT HERE TO PROVE JACK.
WHAT THE?!?!?!?! The PROOF for your research IS LIVING IN MY HOME, in thousands of homes and the SUCCESS stories are reported over and over and OVER.The treatments WORK for the most part and SHOULDN'T THAT BE ENOUGH to prove your stupid so called research that probably isn't even happening anyway????
The PROOF is happening RIGHT NOW and is happening for thousands of families that are having to take a majority of  the treatment process and healing of their children in to their own hands. THAT IS NOT OK.
 I HAVE INSURANCE. Why is it so hard to get proper treatments for my son???Why???
Why does this process have to be so difficult?
I mean the whole situation is already a difficult one on its very own.
Why should i have to continue hitting wall after wall after wall, in order to get proper treatments for my son??? TREATMENT THAT WILL HELP HIM.
I DON'T UNDERSTAND.
WHAT IS THE POINT OF EVEN HAVING INSURANCE?
You know, I am a pretty persistent person and i am hell bent on making this shit happen. maybe its not happening as quickly as i like but i will never give up. I feel bad for the front desk people at the offices of doctors and medical facilities that i am trying to get something going from and feel sorry for the customer service people at Aetna (YOU SUCK AETNA) because i will not give up. i am a relentless beast when it comes to making sure Liam and any of my kids for that matter get what they rightfully deserve, and need.
And there are no answers. None. Its maddening and ridiculous and pathetic and sad...............................

Sorry went on a bit of a tangent there.... wooooosahhhhhhhhhhh...........
Ufff! That actually felt good.

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